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And then there are those really awesome people who think they are the only ones who “get him” and congratulate themselves on their miraculous powers of understanding, their “special connection”.
The idea that autistic people don’t care about other people is offensive
The depressing data will show that autistic people are lucky to get a job – any job – let alone control the world through a technology hub. We parents of these kids can only hope better education will change that.
But apart from all of that, the idea that people on the autism spectrum don’t know or care about other people is offensive and wrong. It makes their ability to navigate a path through this world so very vexed. Let’s be very clear: how people with autism might appear in company and what they know or think about, or care about, are quite distinct things.
My boy cares deeply about other people. He tells his little sister, his dad and me that he loves us many times a day.
Sometimes he misreads people’s intentions – difficulty with interpreting facial expressions is a hallmark of autism.
But he is so empathetic that sometimes it seems to literally hurt. He can’t bear to see me cry.
I have seen him, when another child is hurt, run over and pat the child and loudly console them (and sometimes he tells them that he loves them).
He adores babies and told his five-month-old cousin the other day he was “the most beautiful baby in the whole, whole world”.
He doesn’t say the “cool” thing; he doesn’t check his behaviour like a neurotypical kid would. He just does what feels right.
At a local playground, he will often run up to children, tell them his full name (and his sister’s, and his Mum’s, and his Dad’s, and his Nana’s …).
He’ll ask to play. He’ll beam from ear to ear. He might throw in some information on the alligator population of Louisiana or what snakes you are likely to find in the wilds of Panama.
He’s then confused when they don’t want to hang out. It happened just today. The kids kicked the soccer ball away from him and ran off.
I saw him standing, alone, in the middle of the oval. My heartbreakingly handsome boy. Kicking a tuft of grass and pretending not to notice they had shunned him.
He is not the one who doesn’t care about other people – I would say they are, the people who can’t handle “different”. And by different I mean enthusiastic, guileless, a bit wacky, nice.
I am not saying autistic kids are all angel-children. The world is a difficult place for them to navigate.
Some days, I have wept in frustration
They are often beset by sensory overload – harsh lights sting their eyes, crowds overwhelm, they struggle to listen when noises like the bark of a dog or the clattering of dishes or the whoosh of a coffee machine compete for their attention. Sometimes it all gets too much.
They lash out; they say exactly what they think regardless of propriety, they hide under a blanket. They feel too much. Some days, I have wept with frustration at this.
But all of this is often misinterpreted. I remember a mother who was upset that my son, then six, had pushed hers when my boy was unregulated – that is, overwhelmed by noise and confusion.
She accused my boy of bullying. If only she knew how hilariously off the mark that was.
My boy simply wouldn’t know how to bully. He’s just not capable of that sort of manipulation.
He was dazzled with sensory frustration and there was a kid in front of him. He pushed him. He told me later that day the kid was his friend. He made a “sorry” card for him.
The kid’s mum responded by trying to petition the school principal to get my six-year-old expelled.
The oft-repeated notion that autistic people are disaffected loners, implying that they are perhaps prone to crime, perhaps the high school shooter – “it’s always the quiet ones” – stings.
I once asked a forensic psychiatrist whom I was interviewing about the stats on people with autism becoming violent or sex offenders.
His look softened and he said, “You’ve got a little one on the spectrum?” I nodded. “I am not sure if this makes you feel any better, but they are far more likely to be victims than offenders,” he said.
The idea that autistic people are not feeling deeply, not analysing their surroundings, their social dynamics, their peers, is also off the mark.
I will never forget a teacher telling me about an autistic boy who had been non-verbal all his life being given a communication tool at the end of high school.
With it, he dictated an essay about his life. It was, by her account, profoundly perceptive. His teachers were floored. He critiqued the various therapies he had been given with maturity and wry scepticism no one knew he possessed.
He joked about his parents. He observed his social situation with great clarity. And this was someone who had barely spoken a word in his life.
It is no longer acceptable to name-call.
Refrigerator mothers have gone, but refrigerator children remain
We’ve moved past the era when it was assumed that cold “refrigerator mothers” created their children’s autism.
But here’s the thing, the refrigerator mothers are gone, but refrigerator children remain.
People keep assuming that to be autistic means to be cold, aloof, out of touch with humanity.
Somehow it’s seen as OK to stereotype people with autism. It’s not. It hurts those people and everyone that loves them. Next time someone does it around you, call them on it.